Our Impact in 2022
With the help of our local ALS community, we provided life-changing care and support to ALS families all across the Land of Enchantment.
People with ALS Served
Care Services Successes
As we look back on 2022, The ALS Association New Mexico Chapter continued the hybrid programs and services that fit our patient community during the pandemic while also exploring opportunities to expand. Not only did our programmatic options increase, offering a rich and robust selection of educational workshops and support groups, but our team continued working around the clock through virtual platforms to keep the lines of communication open. We provided continuity of care to 113 people with ALS through ongoing virtual support, equipment training, multidisciplinary treatment options, and respite care grants.
Empowering families with ALS is one of our main priorities. Through media opportunities, awareness nights, and involvement in numerous local programs, we encourage ALS families in New Mexico to spread awareness beyond diagnosis.
Families were involved in news segments, state advocacy, participation in marketing campaigns, and local events with support from the Chapter
Hours of direct community impact
Pieces of Equipment Delivered
We partnered with vendors to deliver nearly 100 pieces of Durable Medical and Assistive Communication Equipment.
The New Mexico Chapter proudly supports the multidisciplinary ALS Clinic programs of the University of New Mexico Hospital. Together with our clinic partners and dedicated Care Services staff, we work to meet the needs of the entire ALS community.
Our collaborative and global approach to funding research continues to lead to significant discoveries by top ALS scientists around the world. Even in the face of the continued pandemic, our efforts did not slow. Since the inception of the New Chapter, with our 2022 contribution, we have invested more than $15 million in ALS research. In funding both local and global research programs, The New Mexico Chapter has supported initiatives such as:
- $30,000 donated to the UNMH ALS Multidisciplinary Clinic
Invested in ALS Research
Will be invested over 5 years for ALS research
While the pandemic continued throughout 2021, your advocacy for those living with ALS produced some incredible wins, both on the federal and state level. Accelerating Access to Critical Therapies for ALS Act - Thanks to the incredible advocacy of the ALS community, the Accelerating Access to Critical Therapies (ACT) for ALS Act passed Congress and was signed into law by President Biden on December 23, 2021. This act authorizes $100M over five years for ALS research and creates the first federal entity explicitly charged with developing treatments for neurodegenerative diseases. Specifically, the bill would create a new:
- Framework for delivering experimental therapies to people with ALS
- Research grant program at the FDA for rare neurodegenerative diseases
- Collaborative for Rare Neurodegenerative Diseases at the Department of Health and Human
Services (HHS) to coordinate federal efforts on developing and approving treatments and cures.
Where Are Your Donations Going?
.82 Cents of Every Dollar Raised Goes to Our Programs
People attended 12 support groups
Active research projects worldwide
Patients received care and clinical management of ALS through one of our multidisciplinary center
Virtual home visits
in monetary grants to cover hours of in-home health care and additional expenses such as prescription co-pays, and more
Miles traveled to provide local and in-state care